Little Freddie McDonald has rare condition which affects just one in 100,000 -his family are fundraising to help charity

Phil and Emma McDonald, from Ossett, with son Louie and seven month old son Freddie who has the rare liver disease Alagilles syndrome.
Phil and Emma McDonald, from Ossett, with son Louie and seven month old son Freddie who has the rare liver disease Alagilles syndrome.

Freddie McDonald could be forced to spend a lifetime on medication after he was diagnosed with a rare liver condition.

Little Freddie, who is just seven months old, was diagnosed with Alagille syndrome, a rare chronic liver disease.

Now family members are ready to jump out of a plane to raise money for the Children’s Liver Disease Foundation.

His parents Emma and Phil noticed that Freddie looked jaundiced after his birth.

After four weeks Freddie was taken for tests and after six months his parents were told that the tot had the condition, which affects just one in 100,000 and could result in the youngster needing a liver transplant.

Mum Emma, 33, from Ossett, said: “When you’re expecting a baby you take it for granted that you have got a perfectly healthy baby.

“Nothing can prepare you and it’s life changing. It’s a very rare disease. It’s a lifelong illness and there is no cure.

“No-one can tell us what will happen. We hope he’s as happy as any other child.

“The main thing was why had it happened to us and it’s hard to come to terms with.”

Emma’s sister Lizzie Parker and sister-in-law Linsey McDonald will do the skydive next month and have already raised over £4,000.

The Foundation recently held a special family day in Guiseley for families whose children have liver conditions.

It allowed Freddie and his older brother Louie, three, to spend quality time with their parents. Emma added: “I wouldn’t have been able to get through it without our family and friends.”

To donate visit www.just
giving.com/Freddiejack