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Mum’s mission to help Amelia get specialist therapy

Shabnam Nazir needs to raise �5,000 to pay for pioneering therapy for her daughter Amelia, who has severe cerebral palsy. The  advance biochemical rehabilitation could help Amelia live more independently.

Shabnam Nazir needs to raise �5,000 to pay for pioneering therapy for her daughter Amelia, who has severe cerebral palsy. The advance biochemical rehabilitation could help Amelia live more independently.

A mum needs to raise thousands of pounds after the NHS would not fund a new therapy to help her daughter with cerebral palsy.

Shabnam Nazir said her daughter Amelia would benefit from groundbreaking Advanced Bio-mechanical Rehabilitation (ABR), a tecnique which loosens body mucles to reduce the effects of the condition.

Mrs Nazir, of Barnstone Vale, Wakefield, said Amelia, 3, was not making enough progress with standard NHS physiotherapy.

Mrs Nazir, 31, said: “Amelia is quadraplegic but mentally she is a very bright little girl.

“Basically the exercises would strengthen her inner core. It would reduce the spasticity to help with her bodily functions.”

Mrs Nazir, who gave up her job to look after Amelia full-time, said she needed to raise £5,000 a year to pay for ABR.

Parents carry out exercises for around four hours a day with their kids after being trained in the therapy by specialists in Glasgow.

NHS Wakefield Clinical Commissioning Group (CCG) said ABR treatment could be considered on a case-by-case basis if parents made an individual funding request to the NHS.

Other advanced treatments were available if doctors felt the child would benefit.

But Mrs Nazir said: “The NHS refused to fund ABR but I just think there are alternatives. To me it just doesn’t make sense at all.”

 

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