DCSIMG

Tree of Hope charity helps mum raise cash to fund specialist treatment for daughter

Shabnam Nazir needs to raise �5,000 to pay for pioneering therapy for her daughter Amelia, who has severe cerebral palsy. The  advance biochemical rehabilitation could help Amelia live more independently.

Shabnam Nazir needs to raise �5,000 to pay for pioneering therapy for her daughter Amelia, who has severe cerebral palsy. The advance biochemical rehabilitation could help Amelia live more independently.

Fundraising has started to help a toddler with cerebral palsy have groundbreaking therapy after the NHS would not fund the treatment.

Shabnam Nazir needs to raise thousands of pounds for a new treatment she says will help her two-year-old daughter Amelia live more independently.

The Advanced Bio-mechanical Rehabilitation (ABR) uses exercises to loosen body muscles to reduce the effects of the condition.

After the NHS refused to fund the therapy, Mrs Nazir, of Barnstone Vale in Pinders Heath, teamed up with Tree of Hope, a charity which helps sick children, to collect donations.

Mrs Nazir, who gave up her job to look after Amelia full-time, has managed to fund the first stage of treatment later this month but she still needed around £5,000 a year.

She said: “I still need funding for the rest of the year. The therapy will continue for as long as Amelia needs it, depending on how she progresses. The ABR will reduce the spasticity in Amelia’s muscles and hopefully help her to crawl, sit and walk.”

Parents carry out exercises for around four hours a day with their children after being trained in ABR by specialists in Glasgow.

Sarah Craven, 32, started her son Alex, 2, who also has cerebral palsy, on the ABR therapy a year ago.

Mrs Craven, of Glasshoughton, said: “Alex has improved massively. He can do things he couldn’t do before like sit up and hold his own weight. He can kneel on his own.

“ABR puts very slight pressure on different parts of the body using objects like sponge pads and pilates balls. It helps to build up and strengthen the internal structure of the body.”

NHS bosses said ABR was not normally funded but could be considered on a case-by-case basis if parents made an individual funding request.

But Mrs Nazir said Amelia must have the treatment before she gets any older.

She added: “If anybody could help me organise fundraising events they are welcome to get in touch with me.”

To donate log on to www.justgiving.com/amelia-nazir

 

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